By in Personal

Waiting for the Sleep Study Clinic to tell me what is next.

I hated sleep study clinic.

Now I get this message this morning on the answering machine.

I have to call back and do phone tag.

The gist of the call most certainly indicates the possibility that I MIGHT HAVE TO DO A SECOND SLEEP STUDY.

If I have to do this, I will certainly go mad!

The unfamiliar surroundings, and all those wires and electrodes. GMAB.

But I will do what I must.

I will probably not enjoy it and of course I will only do so if my insurance covers the cost of a second go-round.

My wife has come down with flu.

She had trouble all last night, trying to breath and after over 40 deaths in Dallas County alone, recently, I sigh.

I prepared brewed tea this morning. I also set up the vapor mask so she can breath in some warm vapors.

I am playing the waiting game once again.

I will sit at my PC, pondering that eventual call from the technician from the UTSW sleep study clinic.

My wife is going to take an afternoon nap. Hope she gets better ASAP.

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MegL wrote on January 22, 2018, 2:32 PM

Oh dear, not going too well today. I hope your wife gets better soon and that you get your sleep mask as soon as possible, with or without a sleep test.

VinceSummers wrote on January 22, 2018, 9:27 PM

I am very sorry for your situation, Anthony. And I hate sleep lab. What I don't get is: if you've been found to need a CPAP or some other similar machine, what ever makes "them" think you will be able to do without one at a later date? I've NEVER heard of the condition getting better. By the way, did you ever stop using it for a spell? If so, that may have given them second thoughts. I never, ever stopped using mine.

lookatdesktop wrote on January 23, 2018, 4:05 PM

I had gone over a year without using it sometime ago a few years but, I just got the call, yesterday, that I will be getting a new BiPAP machine, for my mainly Central Sleep Apnea that is covered by my insurance. I will hopefully get the machine within a few weeks and get it all set up. I will have to adjust to the changes. It is set to RAMP up for 20 minutes from low pressure to max pressure to allow me to fall asleep. I know that the time without it has made sleep nearly impossible and daytime drowsiness prevents me from doing anything but laying around and dozing off. I will enjoy the change. I know the BiPAP machine is more expensive than the basic CPAP machine and for that reason the insurance probably took longer to allow it. The long wait, may soon be over.

lookatdesktop wrote on January 23, 2018, 4:10 PM

The lady at the Sleeping and Breathing Disorders Clinic at the hospital that is owned by University of Texas South Western, assured me I will be getting a new machine a BiPAP machine soon and as to my wife's condition, she is still coughing and sneezing but I got her to use the vaporizer machine and it has helped. Last night she slept better than the past 4 nights but she has not been enjoying food much and has had fever. The thing that bothers me most is we both had symptoms about 14 days since my last clinic appointment at the Dr.s office and she has had it worse than I have. I got some fever but it passed but she has had both chills and fever and nausea. It is probably because, in spite of her and I getting flu shots back in October of 2017, we both are only 30% protected, according to the CDC reports on the local news reports. Apparently the H3N2 flu is the worst flu strain to date.

VinceSummers wrote on January 23, 2018, 4:27 PM

I skip ramp ups. Can you override it, or request an override?

MegL wrote on January 23, 2018, 4:59 PM

Hope your new machine works well for you. Glad your wife seems to be recovering a bit. Hope she continues to improve rapidly.

BarbRad wrote on January 25, 2018, 9:52 PM

I hope your wife is doing better and that you get through that second study. My husband thinks I should have one done, but I resist. I see what he goes through to get his mask on every night, and I am quite sure I'd never be able to sleep with one of those things on. I hope you and your wife are both in better health soon.

VinceSummers wrote on January 29, 2018, 1:05 PM

My CPAP provider (Roberts' Home Medical) just phoned me about renewing supplies. I told them, No, I don't need any. I do hope you soon will be benefiting from yours, Old Guy. It bothers me greatly you don't have what you need. It's a panicky thing not to have what you need to breathe properly! I know.

lookatdesktop wrote on January 30, 2018, 10:38 PM

Well, today my wife and I went to get mine. It's a Bipap machine. It offers the use of water vapor but I only want to use the air part for now. But, my symptoms of flu are not all gone yet and I really hope that I don't cough too much tonight so I can try out the new machine for the first time with success. They will monitor my use of it for the next 30 days and I must use it a minimum of 4 hours per night, but I intend to use it all night, not just half the night. They told me that they will keep a running record of it's use to insure that I keep it and once the 30 day period has passed and I get feedback from the sleep and breathing disorders clinic at UT South Western I will then own the device. But tonight will be the first time I ever tried the use of a bipap machine, as I am only familiar with CPAP. Tonight will be the big test for me. Wish me luck.

lookatdesktop wrote on January 30, 2018, 10:40 PM

Thank you so much. It is not easy getting used to wearing the mask let alone have air go in and out at varied pressures while trying to sleep as if normal. But then in my case, it will possibly prevent me from dying early in life and extend my longevity. That will be my main concern, to get used to it for the first time after going many months without one.

lookatdesktop wrote on January 30, 2018, 10:42 PM

My wife's health is slowly improving but the H3N2 flu is a bad bug indeed. Several who got the flu shot back in late September and early October of 2917 still had cases of the flu this month or sometime in the past few months.

lookatdesktop wrote on January 30, 2018, 10:44 PM

I don't have to RAMP it if I choose to just run it at full volume. If so, I can try it but I was told I might have trouble getting to sleep at first so I will first try to use the 20 minute delay RAMP just to get adjusted to the gradual pressure. It is biPap, not CPAP so it will be a lot different and I really hope it doesn't make sleeping more difficult rather than what it is designed to do to help me sleep more easily. I will have to test it out the first time tonight and I will let you know the results tomorrow or soon thereafter.

VinceSummers wrote on January 31, 2018, 9:58 AM

The trial is routine. And if you don't use it more than 4 hours a night, just how important is it to you, anyway? I use mine each night, every night, all night. As to the humidity feature. I have it. Do I always use THAT? No. Too high a humidity and if you have the full face mask, moisture builds up slightly inside, exaggerating leaks around the seal. The noises resulting from those leaks can keep you awake. On the other hand, no moisture, and your mouth and lips can become severely dry. I use either none or a setting of 0.5. Rarely, rarely do I use 1.0. The temperature of the night air affects the humidity at each of those settings. During the summer, it is warmer, more moisture evaporates, there is likely to be more moisture in the humidified air you breathe, so I turn the setting down. In the winter, the air is dryer, so I increase the setting. It's all a game to get you a good, healthy night's sleep. Play the game with skill!

MegL wrote on January 31, 2018, 1:49 PM

Hope it went well for you and that you got a good night's sleep.