In the last couple of days, I have written about my concerns (zebra articles) about going to my liver specialist/surgical oncologist to check some things out that I shared a few weeks ago in Feeling Vulnerable Today .
Such is the life of a "zebra"--in this case, a person who has been diagnosed with Carcinoid Cancer/Neuroendocrine Tumors (NETs). Because it is a systemic cancer, we do not know when or where the next small, seed-like tumor will decide to latch on and have its way with surrounding tissue. Most of us are diagnosed with this cancer in the stage 4 level, because we are misdiagnosed for many years. Doctors go with the easiest way to diagnosis the presenting symptoms early on.
For those who have not read what has been going on, please feel free to go back and investigate the last few days. But I just want to get to the doctor's visit and the MRI:
- The MRI was done and was initially read, and we are awaiting the final radiology report. There does not seem to be any change in the liver lesions (metastases from the carcinoid cancer). There is no initial indication that there is anything new going on in the small intestine or the large bowel.
- The blood work was done, and we will await the results, which take a little while. I do not anticipate any issues, as it is checked every quarter.
So, this leaves the BIG QUESTION: What happened and why?
The only explanation that might be likely is: There could be lesions from the bowel resection from three years ago, which can be difficult for some foods to pass through, which will irritate the area, and cause issue. Other than that, there is nothing else on the scan that could have been cause for the doctor's concern.
Living with this disease is crazy sometimes. The pain is there, but it often goes unexplained, because the tumors can be so elusive. Symptoms present as other things, so it is most often misdiagnosed.
Yet, in my case (as with many), it is a fairly indolent cancer. It is inconvenient, however, and the symptoms are not something I would wish on anyone. Some day, I shall tell that story, but not for today.
Thanks to all of you for your continued thoughts and prayers, and your support of me.
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For more about my life with Carcinoid Cancer, my philosophies, and my fears, please read:
To learn more about Carcinoid Cancer click here for more information and links to Carcinoid Cancer websites
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Image Credit » https://pixabay.com/en/zebra-foal-africa-wildlife-mammal-765732/ by julielines