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Meeting To Be Held At The ARC Tomorrow Regarding Dad

Mum only found out this the other day when she happened to ring up about Dad's chemo (or lack of it) and it is to be held tomorrow at 11pm.

Everyone connected with Dad's care will be there as it's important for them to clarify when he is to have some more chemotherapy. Dad has been telling Mum that he's supposed to be 'going to Preston to have a false leg fitted' and Mum is up in arms about this as it's giving Dad 'false hope.' The reason she says this is due to the fact Dad is becoming thinner by the day because he is having no chemotherapy attacking the cancer. Granted, it's not going to cure this particular type of cancer (or shrink it in any way) but Mum wants assurances that this prosthetic leg thing isn't getting in the way of what's more important right now and that's the chemotherapy. She is desperate to get the consultation regarding the chemo brought forward as 30th March is too far away, in her view.

Dad is becoming fixated on his leg, which is understandable as that's what he is in the ARC for, but to give him hope about a false leg being fitted when his cancer should be the priority now (especially since the stump has healed brilliantly) is unforgivable really and Mum wants answers.

So do I and I'm planning on being there on Thursday for another 2 weeks or so.

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arthurchappell wrote on March 16, 2015, 7:08 PM

sounds a delicate sensitive situation - hope you manage to get answers and any reassurances possible at such a distressing time for all of you

ViperGirl85 wrote on March 16, 2015, 9:54 PM

I am soo sorry you are going through this. :( I hope you guys do get some answers soon, because as you said, the cancer should be the first priority.

jiangliu1949 wrote on March 17, 2015, 2:43 AM

I think chemotherapy should come first at the moment ,even though which can't cure cancer radically .Having you being around is a consolation for Your Mum and she may confer with you about what to do next .

chrisandmark wrote on March 17, 2015, 6:50 PM

Oh, I'm so sorry to hear all this Janey. My thoughts are with you xx

Janey1966 wrote on March 18, 2015, 11:03 AM

Many thanks. Dad has been given another 2 weeks stay at the ARC, something he is very pleased about as he loves it in there. The powers that be still want to measure him up to see if he is suitable for a prosthetic leg but the appointment with the Oncologist remains at 30th March. We just take one day at a time, see where it leads us. There are loads of people connected with his care though, which is reassuring.

Janey1966 wrote on March 18, 2015, 11:07 AM

Many thanks. Dad has been told at the meeting that he will be staying at the ARC for another 2 weeks. Physiotherapy was suspended for the first 2 he was there due to the physiotherapist being off. This is what happens. The job stops when just one person is off. Anyway, they are still going through the procedure to see if he is viable for a prosthetic leg plus the appointment with the Oncologist remains at 30th March. I guess his stump is their main priority at the moment because chemo would attack it if it wasn't 100 right.

Janey1966 wrote on March 18, 2015, 11:11 AM

Mum has explained the ins and outs as to why Dad's stump is the main priority at the moment. It is still being monitored as chemo would attack it if it wasn't 100% right, which is why he is staying in the ARC for at least another 2 weeks. Dad wants to stay permanently as he loves it but Mum said, 'No chance!' as it costs around £700 a week after the 6 weeks free stay is up. This is unfortunate but just the way it is. He is to be measured up for a prosthetic leg (something I'd be surprised if he's eligible for) and the appointment with the Oncologist still stands on 30th March.

Janey1966 wrote on March 18, 2015, 11:12 AM

That's OK. We're a strong bunch in this family. Our priority now is to make sure Dad has a birthday to remember on Friday. He doesn't normally care too much about it but he is doing this year, bless him. : smile :

ViperGirl85 wrote on March 19, 2015, 12:24 AM

Oooh, okay. I hope he can get the prosthetic leg, and I definitely wish you all the best. I know it has to be a hard situation all around. :( Stay strong! -Hugs-

jiangliu1949 wrote on March 19, 2015, 5:16 AM

Oh ,few people can afford it ,it cost £100 each day .It is said that it averages out at 3%-25% for people who suffer from pancreatic cancer to survive it after surgery for five years .It depends on people's mindset and aftercare .